It is time to take action
It is an honor to announce that I have been nominated to receive a WEGO Health Award.
Now I need your help! If I have made a positive impact on you, please consider endorsing me and share with your friends!
While we do not enjoy this part, asking our community of disabled patients for financial support, being able to respond to requests to share the patient perspective & disseminate information about new language in Oklahoma law is the only way we can make the most of changes we all fought so hard to get passed into law.
The Oklahoma 2021 Legislative Session was a whirlwind and a huge SUCCESS!
We started out the year by filing a bill, HB1013, that was one of three bills intended to address the needs of pain patients and protect Oklahoma prescribers. That bill never made it to committee but got the conversation started in many offices across the state.
We worked with Senator Radar and Representative Echols to mold another existing bill into what was signed into law by Governor Stitt in May, Senate Bill 57 #SB57.
This bill allowed us, in addition to a few other changes, to add a sub-section at the end that puts plain language into Oklahoma law reminding patients and practitioners that there is nothing in Oklahoma's state opioid law (The anti-diversion act) that requires limiting or reducing prescribed opioid doses. It delineates the *Standard of Care* as requiring EFFECTIVE and IDIVIDUALIZED pain management - isn't that all any has ever asked for? The final sentence in that sub-section creates a basis for determining 'appropriate dose'. It validates that Oklahoma will defer to FDA approval limits regarding opioid prescribing (sorry CDC) and states that the prescriber determines what is appropriate. This alone is a huge win.
Two of the other changes involve giving patients access to their own PDMP records and to include patients who's pain is caused by cancer, even if their cancer is in remission, in exemptions for certain prescribing requirements.
The final change officially separates palliative care from hospice care, finally aligning Oklahoma law with the most widely accepted definition of palliative care. For far too long it has been inappropriately thought of as synonymous with hospice/end of life care or been associated strictly with opioid prescribing - neither are accurate.
Click below for a pdf that shows each change and it's implications. While there are definitely more ripples in the system coming because of this bill, this is all the lawyers would let us claim publicly.
The great news is, we are hearing incredible feedback from prescribers across the state of Oklahoma and learning of patients who were abandoned in 2016 finally finding adequate care.
Here is a good way to start making contact with the elected officials that represent you.
This will help prepare them for the flood of constituents politely demanding action when the next project drops.
This video is a compilation of screenshots to quickly show you how to sign on and send this open letter that is now a trending petition on resist.bot.
Please take 5 minutes today and check back weekly to ensure Congress gets the messsage.
All you need to do is click here, read the letter, and if you feel the same way then follow the prompts below it. If you have any questions or need help, click the 'message us' button on this page and we will walk you through it!
This is a great way to keep up to date with our latest project and connect with our team socially.
Follow us on twitter @fightpaindaily for updates on this #DontTellUsTellThem campaign!
Your support and contributions will enable us to meet our goals and improve conditions. Your generous donation will fund our mission.